Many people wonder what it's like to have chronic fatigue syndrome and I just say them to imagine having a bad flu without the chest congestion and runny nose that won't gets any better. Sometimes I tell them having chronic fatigue is like driving 750 miles straight through. That feeling of being lost, tired, your eyes are tired and you just want to crawl into bed.
Unfortunately for people with chronic fatigue syndrome, the bed doesn't do much to reset your health.
When you have chronic fatigue syndrome you feel fatigued for long periods of time, such as weeks, have severe headaches, nausea, muscle cramps, joint pains that feel like arthritis, light sensitivity and a lot of symptoms.
Unfortunately for people who have CFS, there are no known cures. The only thing you can do to treat chronic fatigue syndrome is practice pacing yourself, find a suitable medication that works without having many side effects as well as get much needed rest.
Over time you will realize that you cannot perform your daily tasks such as doing laundry, going out to eat, seeing friends, watching long movies. It's easy for depression to set in at this point and panic. It is everyday that you read a new wonder drug for people with CFS, you think it sounds interesting, you try it and are let down because it seemed the treatment was pure snake oil.
This often goes on, over and over again, after all you have to be your own doctor, because the doctors don't actually know what CFS is. Even if they know what CFS is, they haven't been trained to deal with it properly.
Really, CFS is something that you will have to learn to deal with. You will have to deal with doctors saying that there isn't anything that they can do to help your situation, except to send you to pain management doctors.
It is not uncommon for a CFS sufferer to be recommended to a therapist for a mental evaluation. It is so easy to become depressed, develop social anxiety when you have a limited disabled lifestyle.
You can keep CFS at bay for a little while with exercise, but your body soon will tell you that it needs to take a much needed break. Those signs that you need a break will start to become everyday until you are laying in bed 85% of the time. It's really a never ending cycle that snowballs out of control. Since you are unable to perform as many tasks, you find yourself laying in bed more often, you start to put on weight, which really increases the symptoms of chronic fatigue syndrome.
Everyone is different and there are many things that you can do to lessen your symptoms. Just because there isn't a cure for chronic fatigue, doesn't mean that there aren't ways to make coping with it easier for you and your family. Things such as different types of vitamins help you with pain, concentration, joint pain, sleep. Different types of sleep aids, natural and prescription will help your body get a more restorative sleep. You just have to find the right formula that works with your body, never give up hope!
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